THE EVENT
The last day in February is Rare Disease Day, with the goal of raising awareness for rare diseases throughout the world. This is a day that has special significance to me and my family. In order to help raise money, we will be performing a Stroll Through Eorzea on Sunday, February 28th. This event will be held by myself and the lovely people of Misfits of Nobility on Gilgamesh. Any are welcome to come walk with us, and there will be rest stations along the way, where we will giveaway in-game items to those who join us!
The Stroll will begin at 1 pm EST, starting in Limsa Lominsa on the Gilgamesh server. Giveaways will happen at random stops, and a number of Mogstation items will be raffled to those joining the walk.
THE HOST
My name is Chris, though in-game I go by "Maimonides", or "Maim" for short. More importantly, I go by "Dad" to my little girl Scarlett. At the age of two, my daughter suffered right arm paralysis from Acute Flaccid Myelitis, otherwise known as AFM. According to the CDC, there have been 648 confirmed cases of AFM in the US since 2014, with most of those cases affecting children. Children afflicted with AFM can range from having weakness in a single limb up to full body paralysis. Scarlett was lucky, with only her right arm being paralyzed. We took a cue from "Finding Nemo," in which the titular character has a lucky fin. As such, we began calling my daughter's right arm her "Lucky" arm. My wife and I got nemo tattoos on our right arms for the one year anniversary of Lucky entering our lives so that everyone in the family could have a lucky arm. After having a successful nerve transfer in her arm she has regained some movement in her shoulder, but she remains unable to move her elbow, and she is only able to move her index finger.
The goal of this is to raise awareness for Rare Disease Day and the various rare diseases that affect children throughout the world. I will also be raising money for the Acute Flaccid Myelitis Association, to help those families whose children have AFM. Donations to the AFMA are welcome but are not required to be part of the giveaway.
DETAILS
The Rare Disease Day official website can be found here.
Additional details on the walk can be found here.
Hope to see people there!
submitted by /u/Maimonides_vii
[link] [comments]
Continue reading...
The last day in February is Rare Disease Day, with the goal of raising awareness for rare diseases throughout the world. This is a day that has special significance to me and my family. In order to help raise money, we will be performing a Stroll Through Eorzea on Sunday, February 28th. This event will be held by myself and the lovely people of Misfits of Nobility on Gilgamesh. Any are welcome to come walk with us, and there will be rest stations along the way, where we will giveaway in-game items to those who join us!
The Stroll will begin at 1 pm EST, starting in Limsa Lominsa on the Gilgamesh server. Giveaways will happen at random stops, and a number of Mogstation items will be raffled to those joining the walk.
THE HOST
My name is Chris, though in-game I go by "Maimonides", or "Maim" for short. More importantly, I go by "Dad" to my little girl Scarlett. At the age of two, my daughter suffered right arm paralysis from Acute Flaccid Myelitis, otherwise known as AFM. According to the CDC, there have been 648 confirmed cases of AFM in the US since 2014, with most of those cases affecting children. Children afflicted with AFM can range from having weakness in a single limb up to full body paralysis. Scarlett was lucky, with only her right arm being paralyzed. We took a cue from "Finding Nemo," in which the titular character has a lucky fin. As such, we began calling my daughter's right arm her "Lucky" arm. My wife and I got nemo tattoos on our right arms for the one year anniversary of Lucky entering our lives so that everyone in the family could have a lucky arm. After having a successful nerve transfer in her arm she has regained some movement in her shoulder, but she remains unable to move her elbow, and she is only able to move her index finger.
The goal of this is to raise awareness for Rare Disease Day and the various rare diseases that affect children throughout the world. I will also be raising money for the Acute Flaccid Myelitis Association, to help those families whose children have AFM. Donations to the AFMA are welcome but are not required to be part of the giveaway.
DETAILS
The Rare Disease Day official website can be found here.
Additional details on the walk can be found here.
Hope to see people there!
submitted by /u/Maimonides_vii
[link] [comments]
Continue reading...